Showing posts with label Meniere's disease. Show all posts
Showing posts with label Meniere's disease. Show all posts

Wednesday, February 11, 2015

Wow.......It has been way too long!

I think I will take a quick lesson from my dear friend Christie and be a little bit random with this one....

SO much has been going on and SO much is changing and will continue to change.  Gosh, if there was no change sure would be a boring world though.


First off let me just say.....in looking at my FB news feed these days I am just totally amused at the different attitudes and opinions of this "Fifty Shades of Grey"  I mean really if it isn't someone acting like a school aged kid who just got a peek of their friends parent's VHS Porn in the basement while the parents were asleep it is the complete opposite with the entire "You can't be Christian and watch this movie or read the book, it will destroy your marriage"  OH BS on both counts.  My mother-in-law I just know is looking down on this crazy world saying "Ahhh for F@#*& Sake Give Over Already" (ha ha the English can say that btw)  I swear I can hear her in my ear at this moment!  It makes me laugh.  People really do need to get over it and get over themselves.  I could honestly care less one way or the other, watch it, don't watch it,  but dang live your life, make your choices and quit trying to preach to everyone else.  I am 1000% positive you are all flawed in some way just like the rest of us.  Get off your high horses and stop acting like you are so amazingly wonderful and insightful.  Not to mention.......it isn't porn either, so before you start throwing that word out maybe you should educate yourself a bit. In the mean time stop being so stinking judgmental of everyone who is different from you.   Just sayin'


My friends are as eclectic as my musical tastes which most find to be all over the place LOL  This is something I find when reading my news feed.  If you are on my page there is a reason and I assure it is not because we are just alike. How BLAH would that be! Accept that everyone of us is different in some way.  Stop judging and embrace it.  Learn from it, grow from it. 


Our house is so upside down right now and it is driving me mad.  Every time someone says "Oh you don't have long"  "That little baby of yours is going to be here sooner than you think"  I go into complete stress mode!  Yes I WANT him here all safe and sound but I also want this house right side up again before he makes his arrival.  My Husband "We have time"  Me "OMG....this house is never going to be ready on time"  LOL  Good thing we balance one another out.


I have some chores to do here at home so this isn't a long post but it is a start at getting back to this blog......lol

On a final note.....My eclectic music tastes also have a little to do with my desire to understand what one writes/sings about.  Rob Thomas, like many, writes about what he knows.  There is a song called Her Diamonds  The song is about his wife Marisol who suffers from an Auto-Immune disease.  If you aren't familiar with Auto-Immune diseases ( there are a lot ) you should really read up.  You should stop and think in the future before you pass judgement or before you open your mouth saying something you can't take back that will affect another human to the core.  I know several who suffer from various types of Auto-Immune diseases.  Heck I have 2 myself one of which I only learned of a few years ago and the other I only learned of 6 months ago.  Man, it sure did explain some things I had wondered about for sure.  My sweet niece Starla battles one daily!  None the less.....You never really know what is going on with someone at first glance. 




I always like to share a quote.  I just reminded someone of this quote.  I learn more and more that it is SO true!  Quote by:  Theodor Seuss Geisel aka Dr Seuss (although there seems to be some uncertainty out there as to who really came up with this quote)





"Those Who Mind Don’t Matter, and Those Who Matter Don’t Mind"

Saturday, August 24, 2013

Meet my niece Starla and my brother-in-law Joshua


MEET Starla

Starla is a bright 15 year old that has been diagnosed with Meniere's Disease.  Starla was a normal young lady until the symptoms of Meniere's started showing themselves about 9 months ago.  Most young people at this age are excited about hanging out with friends, high school, getting their drivers licenses, dating, sports, part-time jobs, but Meniere's has robbed this special young lady of all these things.

Starla has constant ringing in her ears, her balance is very unstable, the room is constantly spinning which makes her physically ill, reading her school books is nearly impossible due to her eyes bouncing so much and the lack of being able to focus on the words.  Starla's hearing is not so good in her left ear; she could become deaf in her left ear (possibly both ears) over time.  She is in need of constant supervision and at times can't even shower without someone with her.  She has fallen so many times and gotten hurt because her balance is so bad.  Her days are long, painful and exhausting; she tries so hard to be symptoms free and does everything the doctors tell her.  There is no cure for Meniere's Disease, the only thing they an do is try to manage the symptoms and pray for a period of time that she may go into remission.

Starla has been working with doctors in her hometown as well as Knoxville, TN.  She has been referred to Vanderbilt Children's Hospital in Nashville TN.  These trips are very long and difficult on Starla and her family.

MEET JOSHUA

Joshua is Starla's step-father, he is a hard working man that is the main supporter for their family.  Nearly 2 months ago Joshua had an accident that left him with a Traumatic Brain Injury.  Joshua is 38 years old and due to the accident he has no memories of the past 38 years of his life.  He is having to relearn who "HE" is, who the people around him are (including his wife and kids), he has no memory of his job or what he does, is learning basic things all over again.

Joshua has started having seizures now due to the Traumatic Brain Injury, this has been a very scary thing for him and his family to go through.  He has been working with a specialist and working on recovery.  It is very upsetting for Joshua knowing that he was always a hard working man with a "family first and most important" attitude and now due to the accident he is unable to work and support his family and feeling so lost inside his own mind.  Imagine, if you will, waking up one day and everything about who you are is gone in an instant.

The family has always been the typed of family that reaches out to help others no questions asked.  The family has always been there to help family, friends, a neighbor or community as a whole.  Now their world has been turned upside down to say the least.  There are three other children in this family, two of which have just graduated high school and starting college and one that is a "special needs' and a junior in high school. - 

See ➡ http://www.youcaring.com/medical-fundraiser/angels-needed-for-starla-and-joshua/82589

Every $1 helps and donations are tax deductible. Please feel free to ask questions and share with others you know.